Andrew Lee, one of Peak’s partners in performance, has fibrous dysplasia of the skull, a rare condition which causes abnormal bone growth. This unusual condition is closely related to craniosynostosis, which causes the plates in a baby’s skull to close prematurely. This accelerated growth can cause issues with brain and skull growth, and the excessive pressure inside the skull, which may lead to asymmetrical development of the skull. Andrew’s condition has had a huge effect on his life, and he has overcome tremendous obstacles.
Andrew has used his story to help people become more in life – through fitness and nutrition – no matter where they come from or what their background is. September is Craniofacial Acceptance Month, and Andrew wants to reach out to the Peak community to help them learn about something they may be unfamiliar with.
Cranio Dad is a website dedicated to fathers of children with craniosynostosis, and this September, they are working to raise awareness of this rare but important condition. On September 13, from 11am to 1pm at Robious Landing park, Cranio Dad will be holding a brown-bag picnic event (with cake!) If you’re interested, hope on over and RSVP to make sure they have enough cake for everyone. This event is open to the public, and will be an opportunity for you to learn more about craniosynostosis. Andrew will be attending and would love to see a big crowd from the Peak family! The deadline to RSVP is September 6, so hop on it!
From Andrew’s facebook page:
I was born with fibrous dysplasia of the skull. It is vary rare. Sometimes those who are impacted die or are severely debilitated their whole life. Luckily, I made it out.
This past year I went into the Chesterfield County school systems to share my story: from nearly ending life because of bullying, to where I am now. This was done with the primary focus of sharing hope with the hopeless. I intend to impact millions of lives over my lifetime doing that same thing.
If there is a 1 percent chance you want to learn about how this can impact someones life, contact me. I will be going to a picnic in RVA on September 13th that will explain it all. Also I may be partnering up with an organization in the area www.craniodad.com. If you want to learn more, come to the picnic with me. If you feel called to donate to the cause do it.